Wheelchair Kamikaze: Tecfidera (BG 12) And PML

Wheelchair Kamikaze: Tecfidera (BG 12) And PML



I hope you get good results and there's nothing as traffic as this seems...if you feel better that should be the best indicator and Id find a new doctor. Doesn't sound like you trust this one and sounds like he's not helpful anyway...

Tec with t day 32??

Well I'm still going strong. Have had some head pains...of little pressures in a few parts but overall...pretty dang good. No tummy symptoms on the Tecfidera...still doing pretty good as long as I don't get hungry. Hoping that subsides over time even further...but it doesn't require much food to calm the tiny bit of nausea...

Hope this dang thing is working!!!

Day 31 Tecfidera with t

So not much new...just some minor tummy aches once in a while but very minor...more like discomforts than she's. I'm eating les with the oils and that could be why...but hoping to get to a place where I'm eating a lot less and still keep from being sick...

Still never have had a flushing...lol...guess I'm glad for that as they don't sound fun...

Tec with t day 30

So far still so good.

I have had one or two days with some burning pain in the tummy. It feels like acid reflux, which I never had pre-tec, but it's not horrible. The thing is I just have to eat pretty decent amounts of food daily. I'm not a fan of that...and I'm sick of eating breakfast food honestly, but most in the world would say being required to eat a lot isn't the end of the world. I am stl hoping that after 45-60 days that I can taper back down. I don't think I've ever eaten a ton of food most of my life in comparison with most others...but I can look at a cookie and gain a pound. So I don't want to end up just so unpleasantly hefty that I'm depressed. Lol.

We will see...
Here's to the gym membership and working out just to keep from getting any worse off.

Alas....

I'm not having any ms stuff going on...just those feelings on days when my allergies are overactive...but the daily allergy pill seems to keep things calm as well...

Day 25...and all is still well tec with t

Well we've got to say I'm officially over the hump. I still have a tiny bit of discomfort...but it's not hardly worth saying out loud.

I'll check back in and log if anything goes awry...and hopefully I'll report great results on my mri in 6 months...

I'm truly excited I made it over the hump....

Day 22 Tecfidera with t

The night was again uneventful. I'm very excited. Thinking I've made it to the other side...

Definitely some nights and days I could have done without getting here...but again, not so awful that it wasn't worth it.

Gotta think the advice of others helped as well...

Nice breakfast...minimum half a piece of sausage with a few bites of scrambled egg or a small order of a hash brown seems to have done it.

Bacon instead of sausage also worked.

Chicken seemed not the best answer for dinner...just seemed I needed a little more fat at first.

Gluten free pretzels snacked on at nautious moments helped perfectly as long as I didn't let myself get to hungry without eating. First sign of hunger...munch a pretzel or something.

If today.hours well...I'll enjoy calling the doc and Shauna his assistant to share the good news that I'm on the other side this week...

Shauna is awesome support!!! :-)

Day 21 tec with t

Well it's difficult to think I've made it over the mark...but I felt just fine all day long. There's a slight twinge of ghost oasis once in a blue moon but I think they are just so slight they are almost not worth mentioning. They scare me for a second...but then I realize they aren't coming back.

I'm staying steady on the eating program with a good protein and decent fat content...but I'm lightening up on the fat content daily and it's not effecting anything. So that's good. I'm drinking lots of water...haven't had the flushing once incidentally. I dropped the enteric coated aspirin regimen when I started feeling sick...just didn't want anything else on my tummy.

I'm having one of those allergy induced relapse moments but I would say they are more exacerbations than a true relapse...I was in the outdoors today for hours with the wind blowing like crazy. Someone else sneezed about twenty times after being outside with me. Since my allergies haven't been sneezy in years...I do think my ms gets kicked into gear.

That's the only thing making me wonder if I took a better immunosuppressive drug that is be better off...but we will see...we'll give this one a chance...

Just thanking God...all the prayer warriors...and my family for getting me through the crazy meds side effects...and into them maybe helping me...